Light at the end of the Tunnel- Found Experienced Keratoconus Lens Fitter
By admin | November 4, 2008
Whew.. what a relief!
My friend had her sister email me. The sister is finishing up her thesis in Contact Lenses! And she emailed a colleague at Waterloo University, Dr. Gina Sobara who specializes in fitting people with Keratoconus. She heads up the contact lens clinic and the University and will see me next week. it a bit of a hike but I don;t care. She thinks she will have no trouble fitting me with RPG lenses AND says DO NOT wear the Synergize contact lenses. She is not convinced enough oxygen gets to the eye.
Thank God!
Will be refreshing to speak with some one who is an EXPERT.
I called optometrist who cancelled the Synergeyes order. I hope she is not mad, but I can;t mess around with this any longer. I was diagnosed end of August and still no better off.
Topics: My Keratoconus Updates | No Comments »
Need to Find Another Contact Lens Fitter in Ontario
By admin | November 3, 2008
I have been increasingly frustrated by my optometrist. She is very nice and capable but does not have much experience with fitting people with Keratoconus. I am starting to think what has happened is newer optometrist and lens fitters just have no experience with hard RGP lenses. It is just so cheap and soft cont lenses are such high quality now that rarely do people need or want the rigid gas permeable lenses. ( tho having tried both the quality of vision if you have astigmatism and wear toric lenses is not even comparable)
This morning I got in touch with an old friend who has a sister that just finished University and is now an optometrist. I am hoping she will some recommendations for me. I have called every where and most lens fitters don’t have the experience and/or won’t admit they don’t have the experience.
Topics: My Keratoconus Updates | No Comments »
New contact Lens Study for Keratoconus by Synergeyes Lenses
By admin | November 1, 2008
This might be a good way to get a free pair of Synergeyes.
If you have Keratoconus consider this trial for contact lenses:
SynergEyes Clinical Study
SynergEyes, the industry leader in hybrid contact lens technology,
invites you to participate in a SynergEyes Keratoconus clinical study.
SynergEyes is designed to provide your eyes the crisp vision of a
rigid gas permeable (RGP) lens and the comfort of a soft lens. The
purpose of this study is to analyze new lens design configurations
that have been created for improved lens comfort and wearability. The
clinical study will take place at SynergEyes offices in Carlsbad,
California, to evaluate and dispense multiple lens designs, and allow
for various progress visits. Most visits will be about 1 hour long.
This is a great opportunity to learn more about keratoconus and
assist in the development of a new treatment option. If you would
like to participate or have any questions, please call the SynergEyes
study enrollment coordinator, Jessica Ackerman at 760-444-9629 to
schedule a screening evaluation. Enrollment is filling rapidly, and
study subjects will be enrolled on a first-come, first-served basis.
If you would like to participate, do not delay in contacting Jessica
to indicate your interest.
Topics: Contact Lens for Keratoconus, PMD and Keratoconus | 1 Comment »
Wore My SynergEyes Contact Lens Trials
By admin | October 28, 2008
Well, I am back from my optometrist. Some good news- the Synergeyes feel very comfortable and she will try wearing one of the Synergeyes Lenses in my bad eye ( the left) and try and regular soft toric contact lens in the right.
This may sound nuts but I think I may be one of the few people on earth that prefer the feel of a hard RGP lens to soft. I could never wear soft lenses in the past- my eyes are way too dry. I don’t think the problem of my reaction to contact lens solutions was ever solved as well. I do remember in the 90’s
using Hydrogen peroxide based system to clean and disinfect but not sure if that was for solution sensitivity.
The SynergEyes is a hard RGP center with a soft lens skirt. There are some mild concern that may not be the healthiest choice for me- the soft part not letting in enough oxygen.
It should take about a week for new lenses to come in. They come from the States and cost was 340.00 for one lenses and no clue about the monthly soft toric lens. I think it should be about 50.00 for 6 months
Topics: Contact Lens for Keratoconus, My Keratoconus Updates | No Comments »
My Synergeyes Contact Lens
By admin | October 20, 2008
After bot of a mix-up I am going in tomorrow to try my first pair of Synergeyes lenses. There are a hybrid lens with a rigid gas permeable in centre and surrounded by a soft lens skirt. They are supposed to be very comfortable and my solution to the lens popping out issue I am having with my RGP lenses.
I have been waiting 2 months now to get pair that work.
I am also wondering if I have PMD, a variation on the mis-shapen cornea. I may have a pregnant belly cornea and not a boob-shaped cornea. Does it ever end?
Topics: Contact Lens for Keratoconus, PMD and Keratoconus | No Comments »