Still No Contact Lens for My Keratoconus
By admin | April 15, 2009
Yes, its been almost 8 months and I still don’t have a properly fitting contact lens for my keratonic eye.
I was diagnosed late August this year and have jumped though a zillion hoops to get help.
I go to a teaching hospital and care is excellent- just the process takes a long time.
If you are diagnosed with Keratoconus or PMD I cannot emphasis enough how important it is to get some one with experience with the disease.
The first eye doctor to diagnose was very nice, experienced and competent but just didn’t have much experience. After a few tries at fitting me with a hard rigid gas permeable contact lens she went to SynergEyes contacts which are not only expensive but don’t allow as much oxygen to the eye.
By fluke I ended up at School of Optometry and got “experts” to do fitting.
Last week was I HOPE my final fitting for a while. The guy did tell me most people with Keratoconus take about a year from diagnosis to get a good fit (!) Which no none told me at beginning.
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No related postsTopics: My Keratoconus Updates |
May 22nd, 2009 at 1:34 pm
Hey.
My name is Keisi and im 18 years old.
I would like to talk with you about this disease. I don`t know anybody who has it… and I hope you could find some time to tell me about youre experiences.
Sorry, my english is not good:D
write me:)
July 30th, 2009 at 1:41 pm
I too suffer form this. I live in Boston and have found someone that has been doing this for over 20 years and is now fitting me for the hybrid hard lensses that have soft rims and hard middles. Please read how to take care of your lenses on the kerat site and only use boston simplus, not advanced solution. and do not ever rub your eyes after you take them out at night or you will scratch you cornea and make it very painfull when you wear them. I can get you my docs name if you have any questions. take care