My Keratoconus Updates Archives

Last week during lens fitting for my Keratoconus the doctor picked up that I have Fuchs Dystrophy.
At first I was bit in shock- what are the odds of having two unrelated degenerative eye disease’s of the cornea? Very weird. I cant find any info on it but I wanted to know if others with Keratoconus are more prone to Fuch’s.

It is interesting to note that after diagnosis and treatment of Fuch’s a lot of symptoms cleared up that I had attributed to my Keratoconus. The symptoms of KC and Fuchs are similar.
The last year or so I found that my sensitivity to light really increased. I was having a lot of trouble in rooms lit with fluorescent and CFL bulbs. The last few visits to eye doctor I was asking for help with this and possibly getting tinted gasses to wear indoors.

The treatment for Fuchs is a sodium chloride based ointment in the eyes at night or drops times a day.
The ointment is sold under the name Muro 128
and is on the expensive side- Muo brand is about 20.00. I noticed on Amzon they are selling a generic brand for less than half, Sodium Chloride 5% Ophthalmic Ointment 0 .12 oz (3. 5 gm) (Compare to Muro 128.).
I am not crazy about the ointment- you have to put in before bed and then your eyes are full of sticky thick ointment and vision horrible. It does burn slightly.
the advantage to Muro ointment is you only have to use at night. I am not a fan and will forget.
I had avoided the Muro Drops
( also available generically Muro 25.00, generic Sodium Chloride 5% ophthalmic solution - 15 ml still much cheaper) becuas eye doctor warned me that they really urn when putting in. After the night if ointment I was willing to try. It wasn’t as bad as I thought it would be. It burs for about 3-5 seconds and then its fine. I have switched to drops pretty much exclusively. I would try both.

Did Treatment for Fuchs Work?
Other than a corneal transplant sodium chloride is only effective treatment. The salt in solution pulls excess water in eyes out and reduces swelling in the cornea. I found an immediate and profound difference the next morning.
My vision was crisper and higher contrast. My eyes were not sore in the morning- something I attributed to my contact lens wear. I am less sensitive to light and less halo and glare effect at night when driving- all things i thought were worsening Keratoconus.
So it was a bad news good news scenerio. Yes I hve new eye condition but my vision is better and less painful.

More Information on Fuchs’ Endothelial Dystrophy:’_dystrophy

Red Ring Round Iris after Wearing RGP Lens

I wear a Jupiter contact lens on my left eye to correct my keratoconus ( PMD). The lens is basically a very large RGP contact lens.. sometimes called a semi sceleral lens.
I have notice lately that my lens can be a bit painful and at night when I take lens out there is a red ring around one side of my iris- like popped blood vessels. Its gone in the morning.

I have appointment with fitter next month and hopefully they can help me with the issue. I do notice that it is worse when i take allergy medication so I think it may be related to dry eyes.

Argh. I suffer from terrible allergies in the spring. One of the worst things is that when I take an allergy pill my eyes dry right up and my hard contact lens becomes almost unbearable to wear.
I have been takingClaritin the (generic version is Loratadine. I was at my sisters last week and she only had Reactine ( called Zyrtec
in the States) generic name Cetirizine, and I took that- I noticed a big difference- my lens was not nearly as uncomfortable.
The difference was quite noticeable.

What I also do to relieve the pinching feeling I get is remove lens throughout the day and put fresh saline into the lens. This helps somewhat.
I am starting to think I need a new lens.
If you have any tips for wearing hard lens and allergies would love to hear them.

I struggle with this one. I find my contact lens gets a bit gunky if I leave in and put one my eye make up with contact lens inserted. My eye make up can be pretty heavy on a Saturday night!
If I take out then I cant see to put in lens. I have kerataconus so when I don’t have my contacts in I am legally blind in left eye and struggling with right.
I did a bit of research and asked optician - general consensus is too put on eye make up WITH contact lens inserted.

From Viscon Contact Lens website:
* Apply cologne, deodorant, and hair spray before inserting your lenses.
* Wash hands thoroughly with oil-free soap prior to inserting lenses.
* Put your contacts in before applying make-up.
* Use a water-based but water-resistant mascara that is not prone to flaking. Two thin coats are better than one thick coat.
* Use a soft pencil eyeliner rather than a liquid or powdered version that will flake off.
* Use pressed powder eye shadow rather than liquid or cream. Never use pearlized or frosted types that may contain tinsel. ( Tinsel in my eye makeup?????)
* Always remove your lenses before removing makeup.
( Nothing like smearing greasy remover all overy your RGP’s !!! )

My Keratoconus Getting Worse and Painful Contact Lens

I am still only wearing one lens ( semi- scleral or Jupiter contact lens) on my left eye. The Lens is like a very large RGP. It doesn’t give me crystal clear vision like I had with regular RGP lens but its very very comfortable.
I was SUPPOSED to get fitted for new one several months ago- however when I was at regular eye doctor she said lens looked fine.
I do notice more pain in my eye. It gets quite sore and sometimes a feeling of pinching or sharp pain in the eye. I notice it is especially bad were eye is dry - while driving in heated car for example.

When lens out can barely see anything in left eye- horrible distortion which makes watching TV before I go to bed a pain.

I am trying to keep lens of right eye for as long as possible.

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