I called my current optometrist and told her I would be goin to the University and to please cancel the Synergeyes order. I only got a old of frint desk person. I hope she is not mad, or ego bruised. I can’t mess around with this any longer. I was diagnosed end of August and still no better off.

This morning I got in touch with an old friend who has a sister that just finished University and is now an optometrist. I am hoping she will some recommendations for me. I have called every where and most lens fitters don’t have the experience and/or won’t admit they don’t have the experience.

If you have Keratoconus consider this trial for contact lenses:

SynergEyes Clinical Study

SynergEyes, the industry leader in hybrid contact lens technology,
invites you to participate in a SynergEyes Keratoconus clinical study.

SynergEyes is designed to provide your eyes the crisp vision of a
rigid gas permeable (RGP) lens and the comfort of a soft lens. The
purpose of this study is to analyze new lens design configurations
that have been created for improved lens comfort and wearability. The
clinical study will take place at SynergEyes offices in Carlsbad,
California, to evaluate and dispense multiple lens designs, and allow
for various progress visits. Most visits will be about 1 hour long.

This is a great opportunity to learn more about keratoconus and
assist in the development of a new treatment option. If you would
like to participate or have any questions, please call the SynergEyes
study enrollment coordinator, Jessica Ackerman at 760-444-9629 to
schedule a screening evaluation. Enrollment is filling rapidly, and
study subjects will be enrolled on a first-come, first-served basis.
If you would like to participate, do not delay in contacting Jessica
to indicate your interest.

This may sound nuts but I think I may be one of the few people on earth that prefer the feel of a hard RGP lens to soft. I could never wear soft lenses in the past- my eyes are way too dry. I don’t think the problem of my reaction to contact lens solutions was ever solved as well. I do remember in the 90’s

using Hydrogen peroxide based system to clean and disinfect but not sure if that was for solution sensitivity.

The SynergEyes is a hard RGP center with a soft lens skirt. There are some mild concern that may not be the healthiest choice for me- the soft part not letting in enough oxygen.

It should take about a week for new lenses to come in. They come from the States and cost was 340.00 for one lenses and no clue about the monthly soft toric lens. I think it should be about 50.00 for 6 months

After bot of a mix-up I am going in tomorrow to try my first pair of Synergeyes lenses. There are a hybrid lens with a rigid gas permeable in centre and surrounded by a soft lens skirt. They are supposed to be very comfortable and my solution to the lens popping out issue I am having with my RGP lenses.
I have been waiting 2 months now to get pair that work.
I am also wondering if I have PMD, a variation on the mis-shapen cornea. I may have a pregnant belly cornea and not a boob-shaped cornea. Does it ever end?

So she tested fit and went through stuff like “edgelift” and drop etc. She was very happy with fit and said I don’t see it getting any more perfect than this. lets give it a week or two and see what it does in the eye.
we briefly discuss the Synergeyes, I told her felt like I was waling around with 300.00 in my purse and purse had a hole it in and I had to be constantly on the watch for the money falling out and catching it when it fell out..

So I left. The lens I thought felt weird fell out in car 15 minutes later. i was going to Wal-mart with kids and got it back it in The whole time I felt like where the edge of lens would be in left eye I could “see” ridge or it would blur. I could see fine if looking straight but at slight angle would blur. Not sure if I am describing properly.
I do know I have not had that problem with other 4 I have tired in that eye.
5 minutes after getting lens back in I blinked and lens popped out in aisle at Wal-Mart fell out and I couldn’t find it.
Was VERY upset. I had on blue top ( have blue lens) and couldn’t move and had my 5 year old jumping around.. was a nightmare. By some miracle I found it.
I have all ready lost a lens .. the first hour of owning them and my doctor absorbed the cost and no way would she do again.
Nerves were shot. I hauled kids back in the car and went back to doctors office saying lens felt weird.. almost hurt my eye, etc. that it fell out twice in last house. I could sort of feel it scraping or something when I blinked on eyeball itself.

Front desk said to wait and would squeeze me in. I went next door to get snack with kids while we waited.
While I was waiting lens wandered into far corner of my eye and was quite painful.. really painful and rushed back to doctor and left my 11 and 5 year old at Subway.. pain was excruciating.
Some one took it out for me and I suppose they went back to talk to doctor and one of the staff ( they are all very nice) said she was REALLY busy and couldn’t see me- would have to be tomorrow or Monday.. and she was ordering me the Synereyes because she didn’t think she could get better fit .
But how can this NOT be a bad fit? Lens would not wander or fall out if it was a”perfect” fit.

I am going back in couple of days when the Synergeyes come in and also she will take a look at what’s happening with these RGP’s.

This would be quite leap financially the hybrids are 800US and ones I have now are 300.00.
She also did mention that there could be long term problems with the hybrid ( I can’t remember now what issues was) which is why she has been so obstinate about getting the RGP to work.

I do apologize for long post- I have a have time keeping things short!

I also have an opthamologist appointment in January to discuss possible treatments including CR3 treatment, I don;t even know if it available in Canada or if OHIP will pay for it. Not sure if I am a candidate from Intacts as well.

I am now using plain saline to rinse the lenses and that seems to work. I also use something call ed “Blink” moisturizing drops and this works too. I like Refresh drops as well- the kind that come in little pods and have no preservative. I find this has helped quite a bit but weepy and irritation still going on a bit.
My optometrist says she is stumped and doesn’t know why there is still a bit of an issue. She has called manufacturer to verify there is no latex in the contact lens.

Frustration level is very high for me.

I am stunned at what have been missing.There a green flecks in my kitchen counter. I tell people its like going from a 70’s TV set to watching Blu-Ray.

This most apparent thing to me is the dirt in my house. Counter and walls are dirty. Smudges and splatters I literally did not see are jumping out at me. How could I let me kids and family live this way? Disgusted can’t wait to start cleaning this house up.

Also. noticed my eyes burned with lenses in.. very itchy again and worried about pink eye… starting to think maybe was not an eye infection but allergic reaction to lenses or something. Eye drops make it much worse. I mean the “lubricating drops” for contacts. I got one for Bausch & Lomb Sensitive Drops. They are NOT helping.
I have been using Bausch and Lomb Boston Lens 2 step cleaner Bausch and Lomb Boston Lens 2 step cleaner. She also gave me a one step all in one bottle of contact lens cleaning solution called Simplus, but when i tried to wear soft lenses I had trouble with the one step so avoiding using it.

Having great difficulty accepting that these RGP lenses will very be comfortable. I want to claw out my eyes. When I take them still no relief. No clue what s going on.