Wore My SynergEyes Contact Lens Trials
By admin | October 28, 2008
Well, I am back from my optometrist. Some good news- the Synergeyes feel very comfortable and she will try wearing one of the Synergeyes Lenses in my bad eye ( the left) and try and regular soft toric contact lens in the right.
This may sound nuts but I think I may be one of the few people on earth that prefer the feel of a hard RGP lens to soft. I could never wear soft lenses in the past- my eyes are way too dry. I don’t think the problem of my reaction to contact lens solutions was ever solved as well. I do remember in the 90’s
using Hydrogen peroxide based system to clean and disinfect but not sure if that was for solution sensitivity.
The SynergEyes is a hard RGP center with a soft lens skirt. There are some mild concern that may not be the healthiest choice for me- the soft part not letting in enough oxygen.
It should take about a week for new lenses to come in. They come from the States and cost was 340.00 for one lenses and no clue about the monthly soft toric lens. I think it should be about 50.00 for 6 months
Topics: Contact Lens for Keratoconus, My Keratoconus Updates | 2 Comments »
My Synergeyes Contact Lens
By admin | October 20, 2008
After bot of a mix-up I am going in tomorrow to try my first pair of Synergeyes lenses. There are a hybrid lens with a rigid gas permeable in centre and surrounded by a soft lens skirt. They are supposed to be very comfortable and my solution to the lens popping out issue I am having with my RGP lenses.
I have been waiting 2 months now to get pair that work.
I am also wondering if I have PMD, a variation on the mis-shapen cornea. I may have a pregnant belly cornea and not a boob-shaped cornea. Does it ever end?
Topics: Contact Lens for Keratoconus, PMD and Keratoconus | No Comments »
RGP’s stll not fitting and Looking at Getting Hybrid/SynergEyes Contacts Lenses
By admin | October 9, 2008
I was diagnosed with KT in late August and I still do not have a pair of lenses that work.
I have now had 4 fittings with RAP lenses.
I have been going back weekly and went today to get yet another pair.
The last couple of weeks have been fine tuning the fit, and this week I had troubles with lenses falling out, especially when moving eyes to left or right. I will be driving and lens will fall out if I shift eyes.
Today as soon as I put on thought the new left felt “odd”. Optometrist said the feeling is most lily because of putting on a round lens on top of a cone shape and will get used to the feeling. I have been wearing RGP for a month so I do know what they feel like. For me has not been a “comfort” problem so much as a falling out or reaction of solutions problem. I am not complaining about the initial discomfort of the lens- I could see getting to a point where I wouldn’t even notice.
So she tested fit and went through stuff like “edgelift” and drop etc. She was very happy with fit and said I don’t see it getting any more perfect than this. lets give it a week or two and see what it does in the eye.
we briefly discuss the Synergeyes, I told her felt like I was waling around with 300.00 in my purse and purse had a hole it in and I had to be constantly on the watch for the money falling out and catching it when it fell out..
So I left. The lens I thought felt weird fell out in car 15 minutes later. i was going to Wal-mart with kids and got it back it in The whole time I felt like where the edge of lens would be in left eye I could “see” ridge or it would blur. I could see fine if looking straight but at slight angle would blur. Not sure if I am describing properly.
I do know I have not had that problem with other 4 I have tired in that eye.
5 minutes after getting lens back in I blinked and lens popped out in aisle at Wal-Mart fell out and I couldn’t find it.
Was VERY upset. I had on blue top ( have blue lens) and couldn’t move and had my 5 year old jumping around.. was a nightmare. By some miracle I found it.
I have all ready lost a lens .. the first hour of owning them and my doctor absorbed the cost and no way would she do again.
Nerves were shot. I hauled kids back in the car and went back to doctors office saying lens felt weird.. almost hurt my eye, etc. that it fell out twice in last house. I could sort of feel it scraping or something when I blinked on eyeball itself.
Front desk said to wait and would squeeze me in. I went next door to get snack with kids while we waited.
While I was waiting lens wandered into far corner of my eye and was quite painful.. really painful and rushed back to doctor and left my 11 and 5 year old at Subway.. pain was excruciating.
Some one took it out for me and I suppose they went back to talk to doctor and one of the staff ( they are all very nice) said she was REALLY busy and couldn’t see me- would have to be tomorrow or Monday.. and she was ordering me the Synereyes because she didn’t think she could get better fit .
But how can this NOT be a bad fit? Lens would not wander or fall out if it was a”perfect” fit.
I am going back in couple of days when the Synergeyes come in and also she will take a look at what’s happening with these RGP’s.
This would be quite leap financially the hybrids are 800US and ones I have now are 300.00.
She also did mention that there could be long term problems with the hybrid ( I can’t remember now what issues was) which is why she has been so obstinate about getting the RGP to work.
I do apologize for long post- I have a have time keeping things short!
Topics: My Keratoconus Updates | No Comments »
My RGP Lenses to be re-fitted
By admin | September 30, 2008
Had yet another appt. with optometrist to check fit on my RGP lenses ( rigid gas permeable contact lenses). The ye both dropped a little bit so she has ordered new ones. She is going to see if she can get some made from different material. The manufacturer has said these don’t; have latex in them but I am still getting reaction from wearing them. No where near as bad as they were when I was using the all in one cleaning solutions but my eyes still “weep” when they are in and respond with severe irritation.
I also have an opthamologist appointment in January to discuss possible treatments including CR3 treatment, I don;t even know if it available in Canada or if OHIP will pay for it. Not sure if I am a candidate from Intacts as well.
Topics: My Keratoconus Updates | No Comments »
Reaction To Contact Lens Solutions
By admin | September 25, 2008
Well, pretty sure the contact lens solutions are the problem. I feel reaction I have when I pit the RGP’s in my eyes is not so much the lens as the solution. I am not sure what kids of lems I have- In know its a Keratconus lens but not sure who make it.
I feel like I want to claw my eyes out, the itch is awful. When i take the lenses out there is no relief- other than I can itch. The feeling lasts for a couple of hours, Then my eyes weep and crust over. It is a nightmare.
I am now using plain saline to rinse the lenses and that seems to work. I also use something call ed “Blink” moisturizing drops and this works too. I like Refresh drops as well- the kind that come in little pods and have no preservative. I find this has helped quite a bit but weepy and irritation still going on a bit.
My optometrist says she is stumped and doesn’t know why there is still a bit of an issue. She has called manufacturer to verify there is no latex in the contact lens.
Frustration level is very high for me.
Topics: My Keratoconus Updates | No Comments »