RGP’s stll not fitting and Looking at Getting Hybrid/SynergEyes Contacts Lenses
By admin | October 9, 2008
I was diagnosed with KT in late August and I still do not have a pair of lenses that work.
I have now had 4 fittings with RAP lenses.
I have been going back weekly and went today to get yet another pair.
The last couple of weeks have been fine tuning the fit, and this week I had troubles with lenses falling out, especially when moving eyes to left or right. I will be driving and lens will fall out if I shift eyes.
Today as soon as I put on thought the new left felt “odd”. Optometrist said the feeling is most lily because of putting on a round lens on top of a cone shape and will get used to the feeling. I have been wearing RGP for a month so I do know what they feel like. For me has not been a “comfort” problem so much as a falling out or reaction of solutions problem. I am not complaining about the initial discomfort of the lens- I could see getting to a point where I wouldn’t even notice.
So she tested fit and went through stuff like “edgelift” and drop etc. She was very happy with fit and said I don’t see it getting any more perfect than this. lets give it a week or two and see what it does in the eye.
we briefly discuss the Synergeyes, I told her felt like I was waling around with 300.00 in my purse and purse had a hole it in and I had to be constantly on the watch for the money falling out and catching it when it fell out..
So I left. The lens I thought felt weird fell out in car 15 minutes later. i was going to Wal-mart with kids and got it back it in The whole time I felt like where the edge of lens would be in left eye I could “see” ridge or it would blur. I could see fine if looking straight but at slight angle would blur. Not sure if I am describing properly.
I do know I have not had that problem with other 4 I have tired in that eye.
5 minutes after getting lens back in I blinked and lens popped out in aisle at Wal-Mart fell out and I couldn’t find it.
Was VERY upset. I had on blue top ( have blue lens) and couldn’t move and had my 5 year old jumping around.. was a nightmare. By some miracle I found it.
I have all ready lost a lens .. the first hour of owning them and my doctor absorbed the cost and no way would she do again.
Nerves were shot. I hauled kids back in the car and went back to doctors office saying lens felt weird.. almost hurt my eye, etc. that it fell out twice in last house. I could sort of feel it scraping or something when I blinked on eyeball itself.
Front desk said to wait and would squeeze me in. I went next door to get snack with kids while we waited.
While I was waiting lens wandered into far corner of my eye and was quite painful.. really painful and rushed back to doctor and left my 11 and 5 year old at Subway.. pain was excruciating.
Some one took it out for me and I suppose they went back to talk to doctor and one of the staff ( they are all very nice) said she was REALLY busy and couldn’t see me- would have to be tomorrow or Monday.. and she was ordering me the Synereyes because she didn’t think she could get better fit .
But how can this NOT be a bad fit? Lens would not wander or fall out if it was a”perfect” fit.
I am going back in couple of days when the Synergeyes come in and also she will take a look at what’s happening with these RGP’s.
This would be quite leap financially the hybrids are 800US and ones I have now are 300.00.
She also did mention that there could be long term problems with the hybrid ( I can’t remember now what issues was) which is why she has been so obstinate about getting the RGP to work.
I do apologize for long post- I have a have time keeping things short!
Topics: My Keratoconus Updates | 1 Comment »
My RGP Lenses to be re-fitted
By admin | September 30, 2008
Had yet another appt. with optometrist to check fit on my RGP lenses ( rigid gas permeable contact lenses). The ye both dropped a little bit so she has ordered new ones. She is going to see if she can get some made from different material. The manufacturer has said these don’t; have latex in them but I am still getting reaction from wearing them. No where near as bad as they were when I was using the all in one cleaning solutions but my eyes still “weep” when they are in and respond with severe irritation.
I also have an opthamologist appointment in January to discuss possible treatments including CR3 treatment, I don;t even know if it available in Canada or if OHIP will pay for it. Not sure if I am a candidate from Intacts as well.
Topics: My Keratoconus Updates | No Comments »
Reaction To Contact Lens Solutions
By admin | September 25, 2008
Well, pretty sure the contact lens solutions are the problem. I feel reaction I have when I pit the RGP’s in my eyes is not so much the lens as the solution. I am not sure what kids of lems I have- In know its a Keratconus lens but not sure who make it.
I feel like I want to claw my eyes out, the itch is awful. When i take the lenses out there is no relief- other than I can itch. The feeling lasts for a couple of hours, Then my eyes weep and crust over. It is a nightmare.
I am now using plain saline to rinse the lenses and that seems to work. I also use something call ed “Blink” moisturizing drops and this works too. I like Refresh drops as well- the kind that come in little pods and have no preservative. I find this has helped quite a bit but weepy and irritation still going on a bit.
My optometrist says she is stumped and doesn’t know why there is still a bit of an issue. She has called manufacturer to verify there is no latex in the contact lens.
Frustration level is very high for me.
Topics: My Keratoconus Updates | No Comments »
Got New RGP Lenses That Fit - 20/10 Vision with Keratoconus
By admin | September 15, 2008
Well, I am pink eye free. I went to eye doctor and new lens for left eye came in. This fits much better.
I am still panicked about losing and I hate taking the lenses out. I have no trouble popping in but take my 6 or 7 times to get them out. The left comes out easily but rough time with the right.
I am stunned at what have been missing.There a green flecks in my kitchen counter. I tell people its like going from a 70’s TV set to watching Blu-Ray.
This most apparent thing to me is the dirt in my house. Counter and walls are dirty. Smudges and splatters I literally did not see are jumping out at me. How could I let me kids and family live this way? Disgusted can’t wait to start cleaning this house up.
Also. noticed my eyes burned with lenses in.. very itchy again and worried about pink eye… starting to think maybe was not an eye infection but allergic reaction to lenses or something. Eye drops make it much worse. I mean the “lubricating drops” for contacts. I got one for Bausch & Lomb Sensitive Drops. They are NOT helping.
I have been using Bausch and Lomb Boston Lens 2 step cleaner Bausch and Lomb Boston Lens 2 step cleaner. She also gave me a one step all in one bottle of contact lens cleaning solution called Simplus, but when i tried to wear soft lenses I had trouble with the one step so avoiding using it.
Having great difficulty accepting that these RGP lenses will very be comfortable. I want to claw out my eyes. When I take them still no relief. No clue what s going on.
Topics: Contact Lens Solutions, My Keratoconus Updates | No Comments »
Polysporin NOT a Great Option for Pink Eye and I LOVE Opticrom
By admin | September 11, 2008
Well, back from doctor with prescriptions in hand. Taking Garamycin drops to clear up this eye infection- tho doctor thought possible it is reaction to Polysporin or contact lens solution. The eye doctor looked at my eyes Tuesday and she said it was bacterial… but my family doctor doesn’t think so. She di give me some drops to help relieve the pain/burning/itch in my eys and its like a miracle drug. The drops are actually over the counter, Opticrom.. I think they are a steroid drop that relieves symptoms and does not cure.
I cannot recommend these drops enough- the terrible symptoms of my pink eye were almost done within seconds of using the Opticrom.
My doctor also said that lots of people have a reaction to Polysporin and she does not recommend for eye infection or pink eye. This makes sense. My eyes seemed to get worse when I started ti use. I out the drops in after about an hour of noticing my eyes were itchy and I had full blown horrible crusty eyes the next morning. The only thing that helped was stopping the drops and using warm salt water compress with sterile cotton pads.
Hopefully nightmare will be over soon.
Topics: Contact Lens Solutions, My Keratoconus Updates | No Comments »